Takeaway
Several items of the amyotrophic lateral sclerosis functional rating scale-revised (ALSFRS-R) did not accurately represent the functional abilities or situations experienced by people living with amyotrophic lateral sclerosis (ALS).
Why this matters
ALS is a progressive neurodegenerative disorder that weakens muscles and impacts physical function.
ALSFRS-R is a qualitative tool that has been developed to evaluate functional characteristics of people living with ALS.
Given the poor prognosis of this rapidly progressing disease, the need for reliable diagnostic tools used to assess ALS is imperative in clinical practice.