A Delphi survey identifies a core outcome set to improve quality of life for people with drug-resistant epilepsy


  • This study defines a core outcome set (COS), that is a widely accepted standard set of outcomes, for quality of life (QOL) in a population of adults with drug-resistant epilepsy.

Why this matters

  • Epilepsy is characterized by recurrent seizures that have a deleterious effect on QOL.  

  • Currently, there is no COS defined to improve QOL for people living with drug-resistant epilepsy.

  • Considering this proposed COS in future trials will allow for meaningful results and consistency in measurement and reporting that can be extended to clinical practice.